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Showing posts from May, 2024
It has come to my attention that May is supposed to be Ehlers-Danlos Awareness Month. I've neglected to post anything, on account of I've been busy coping with the consequences of Ehlers-Danlos. May is a busy month for me. I perform, I do technical work for live theater, and I admin at a couple of places that deal with both of those things. This May, I ended up working for 21 consecutive days without a break. I didn't exactly mean to, but a combination of a coworker having to go out of town for a family emergency and several people who scheduled their spring recitals in September and then failed to do any planning until April slowly whittled away my days off until I had Things To Do every goddamn day for three solid weeks. Ehlers-Danlos Syndrome is officially a genetic disorder of collagen formation. The direct effect is that all of the connective tissue in my body is basically made of Silly Putty. Collagen keeps all of your various bones and muscles strung together, so it ...